update at bottom ....
LOTS OF TYPOS NOT IN THE BEST STATE T.I.A
UPDATE #5 3/6/2014 10:16 pm
Gestational Trophoblastic disease
PARTIAL TWIN MOLAR PREGNANCY
Levels Reached 49000 after some bleeding. (Levels go down after bleeding)
procedure: DNE
BESIDES FOR THE UPDATE WRITING THIS SO MAYBE SOMEONE IN NEED THAT COULDNT FIND A LOT OF INFORMATION LIKE ME ABOUT THIS COULD BENEFIT FROM MY EXPERIENCE. COMPLETE MOLE IS MORE COMMON THAN PARTIAL AND EVEN MORE RARE PARTIAL TWIN MOLAR WITH ONE MOLE AND ONE ONCE VIABLE BABY)
History if this helps anyone any
Placental abruption MC with help of pitocin 04/14/09
Natural MC 12/31/2011
High Blood Pressure
Toxemia/Preeclampsia with my first son via c section 3/17/11
Preclampsia hypertension with second born.son born through VBAC 11/17/12
History of twins in my family (in other words mothers side ) maybe it has something to do with it.
Surgery is tomorrow. 3/7 at 11. I woke up to black heavy bleeding and moderate contractions. The doctor says if flo gets heavier to come in. He is concerned since I don't take blood but these pregnancies from what he said and I've researched are very bloody. Contractions come and go every 13minutes but they're somewhat similar to labor pains not as painful of course. The pain the same, starts mild then more painful and painful. Uterus contracts. Then it goes away. The bleeding is weird. I woke up to a gush of black foul smelling blood (tmi) (smells dead) I can't eat or drink anything not bc of the surgery but bc It's very painful even liquids cause pain. i'm not sure as to why this is I'm hoping that they give us some answers after they inspect the remains . I wish I could wait here but the doctor wants to do the dnc asap. He is afraid I will hemorraghe (sp?) Another symptom im having is shortness of breath the doctor seemed concerned and said before the dnc is done i will get an scan to check the lungs for a cancer caused by the pregnancy. I just hope everything goes well tomorrow. After the procedure he said i will need to be seen for 6months to a year in case my HCG levels start to rise again in which GTD (the mole/tumor) has grown back, is recurrent and I will need chemo. The cure rate is 97%. I'm ready to get off this rollercoaster and start the healing process. The worst part is not being able to compare cases with people bc it isn't common. Staying hopeful that the dnc will go good and that I can keep my reproductive parts to maybe one day try again for our rainbow.
I have been reading about dnc with vacuum aspiration, even though the risks, not being able to compare to dnc with someone like me (with the partial twin molar , history of blood pressure, and no blood transfusions), I feel like it will be okay bc of the fact that it is routine procedure.
Anyway I am hoping to explain everything once I get better. I will update with details no matter what the outcome.
I think thats it. I can't eat or drink anything after 8 hrs prior to the surgery. Going to try and get some sleep. I feel like the contractions are mild enough to sleep through now. Thank you guys for listening and thank you to anyone thats kept up.
******UPDATE #3 AND #4 AT BOTTOM********
UPDATE #2
I've really like to know if anyone can make out this u/s I deleted my photobucket account to post it though maybe someone could do it for me if i send them the u/s pics?
My doctor saw no heartbeat and also saw a huge "what he said" was a bloodclot. Ive been reading forums about not being able to see babys heartbeat because baby is behind blood clot And them being misdiagnose plenty of times.And also not being able to hear babys heartbeat with a tilted/retroverted uterus? Some insight would be nice if you know anything. monday is my second ultrasound with other doctor for another opinion and wednesday i go back for a third ultrasound with the first doctor Who diagnosed me and if nothing good comes from it he will be scheduling d&e or d&c ?
****1ST DOCTORS APPT ** 1St UPDATE****
I was so happy to go to the doctor today to finally see my little peanut. But doctor comfirmed the worst. No heartbeat. Gestational sac was measuring 11wks + though. He did an external and then did the vaginal. Nothing changed. There was a huge what he called blood clot behind the baby that can be seen on the ultrasound. Im so hurt I cant even think right. He gave me blood work i get results monday to see of it was genetic chromosonal or gestational trophoblastic tumour? Idk what that means just that i am devastated and so is hubs. I feel like I fail at being a mother with all of my complications. I wish i was just normal. The doctor wants to perform a dnc since no signs of bleeding and or labor are present but we are going on monday to get a second opinion to be safe before we decide about the dnc. I cant remember if i missed anything my head is hurting from all the crying. I just wanted to get some insight from someone my first miscarriage was a placental abruption labor came on its own my second. Bleeding started and i passed everything naturally. As far as this one. No bleeding no, cramps, nothing.
UPDATE #5 3/6/2014 10:16 pm
Gestational Trophoblastic disease
PARTIAL TWIN MOLAR PREGNANCY
Levels Reached 49000 after some bleeding. (Levels go down after bleeding)
procedure: DNE
BESIDES FOR THE UPDATE WRITING THIS SO MAYBE SOMEONE IN NEED THAT COULDNT FIND A LOT OF INFORMATION LIKE ME ABOUT THIS COULD BENEFIT FROM MY EXPERIENCE. COMPLETE MOLE IS MORE COMMON THAN PARTIAL AND EVEN MORE RARE PARTIAL TWIN MOLAR WITH ONE MOLE AND ONE ONCE VIABLE BABY)
History if this helps anyone any
Placental abruption MC with help of pitocin 04/14/09
Natural MC 12/31/2011
High Blood Pressure
Toxemia/Preeclampsia with my first son via c section 3/17/11
Preclampsia hypertension with second born.son born through VBAC 11/17/12
History of twins in my family (in other words mothers side ) maybe it has something to do with it.
Surgery is tomorrow. 3/7 at 11. I woke up to black heavy bleeding and moderate contractions. The doctor says if flo gets heavier to come in. He is concerned since I don't take blood but these pregnancies from what he said and I've researched are very bloody. Contractions come and go every 13minutes but they're somewhat similar to labor pains not as painful of course. The pain the same, starts mild then more painful and painful. Uterus contracts. Then it goes away. The bleeding is weird. I woke up to a gush of black foul smelling blood (tmi) (smells dead) I can't eat or drink anything not bc of the surgery but bc It's very painful even liquids cause pain. i'm not sure as to why this is I'm hoping that they give us some answers after they inspect the remains . I wish I could wait here but the doctor wants to do the dnc asap. He is afraid I will hemorraghe (sp?) Another symptom im having is shortness of breath the doctor seemed concerned and said before the dnc is done i will get an scan to check the lungs for a cancer caused by the pregnancy. I just hope everything goes well tomorrow. After the procedure he said i will need to be seen for 6months to a year in case my HCG levels start to rise again in which GTD (the mole/tumor) has grown back, is recurrent and I will need chemo. The cure rate is 97%. I'm ready to get off this rollercoaster and start the healing process. The worst part is not being able to compare cases with people bc it isn't common. Staying hopeful that the dnc will go good and that I can keep my reproductive parts to maybe one day try again for our rainbow.
I have been reading about dnc with vacuum aspiration, even though the risks, not being able to compare to dnc with someone like me (with the partial twin molar , history of blood pressure, and no blood transfusions), I feel like it will be okay bc of the fact that it is routine procedure.
Anyway I am hoping to explain everything once I get better. I will update with details no matter what the outcome.
I think thats it. I can't eat or drink anything after 8 hrs prior to the surgery. Going to try and get some sleep. I feel like the contractions are mild enough to sleep through now. Thank you guys for listening and thank you to anyone thats kept up.
******UPDATE #3 AND #4 AT BOTTOM********
UPDATE #2
I've really like to know if anyone can make out this u/s I deleted my photobucket account to post it though maybe someone could do it for me if i send them the u/s pics?
My doctor saw no heartbeat and also saw a huge "what he said" was a bloodclot. Ive been reading forums about not being able to see babys heartbeat because baby is behind blood clot And them being misdiagnose plenty of times.And also not being able to hear babys heartbeat with a tilted/retroverted uterus? Some insight would be nice if you know anything. monday is my second ultrasound with other doctor for another opinion and wednesday i go back for a third ultrasound with the first doctor Who diagnosed me and if nothing good comes from it he will be scheduling d&e or d&c ?
****1ST DOCTORS APPT ** 1St UPDATE****
I was so happy to go to the doctor today to finally see my little peanut. But doctor comfirmed the worst. No heartbeat. Gestational sac was measuring 11wks + though. He did an external and then did the vaginal. Nothing changed. There was a huge what he called blood clot behind the baby that can be seen on the ultrasound. Im so hurt I cant even think right. He gave me blood work i get results monday to see of it was genetic chromosonal or gestational trophoblastic tumour? Idk what that means just that i am devastated and so is hubs. I feel like I fail at being a mother with all of my complications. I wish i was just normal. The doctor wants to perform a dnc since no signs of bleeding and or labor are present but we are going on monday to get a second opinion to be safe before we decide about the dnc. I cant remember if i missed anything my head is hurting from all the crying. I just wanted to get some insight from someone my first miscarriage was a placental abruption labor came on its own my second. Bleeding started and i passed everything naturally. As far as this one. No bleeding no, cramps, nothing.
Comments
@2lilblessings thank you for your prayers.
I agree with @Ourlittlenugget. Doctors do make mistakes. On my September 2013 Birth Club on BabyCenter. In the beginning of our pregnancy a girl had the same thing happen to her. We all told her to get a second opinion, we even begged her because her DH was telling her to just get the D&C and not to get her hopes up. Thank goodness she listened to us. She went in for a second opinion and now she has a beautiful 6 month old baby boy.
would @captivated know anything about this?
******3RD UPDATE (SECOND OPINION WITH DIFFERENT OB) DIAGNOSED AS GESTATIONAL TROPHOBLASTIC DISEASE* HYDROFORMATION PARTIAL TWIN MOLAR PGNCY WITH ONE THAT TURNED INTO MOLE OR WAS ABSORBED AND ONE ONCE VIABLE BABY though not viable anymore )
Yes. Monday I went in for a second opinion she was much more specific as to why this is happening she called it a gestational trophobladtic disease/ a tumour?? / partial twin molar. (Two sperm fertilize one egg. The molar one is etheir absorbed and/the tumor grows on the fetus..the other fetus may have once been viable but she said the abnormal growth (the tumor) usually kills/consumes it. Causing no viable babys. The first doctor called it a blood clot. He ran test and i haD NOt got a word. My dnc is tomorrow and she said they will produce a test on the findings. I know she said it was a rare condition but why me? Statistics mean nothing to me anymore. She said my levels are at 49,000 ? If anyone knows anything about this please help me. Ive found some forums where the one fetus lives but she confirmed it was not viable. I cant find much on the internet. Its no help. If anypne knows anything id really like yoir input. Im distraught i thought having to handle another mc would be tough Much less two. Ive stayed up for i dont know how long just looking. Ive messaged some but theyre from years ago i dont get any responses.
Im really scared about the dnc she said she will use suction.im scared of the risks. Of having a hysterectomy. Im just all over the place.
My dnc was supposed to be today but my doctor decided she wanted to perform the procedure with a high risk specialist ob. Shes worried bc i dont do blood transfusions and she says that theyre is usually more bleeding involved in this procedure and women sometimes need transfusions. They are doing the procedure at a hospital at the medical center. I usually have everything done at the one in town. It makes me feel better that they're will be two doctors. As creepy as you guys may think it is I just wasnt ready to do this anyway. If it were for me I kind of wish I could just wait it at home but I cant. Its Friday at 11:30 I feel like the clock is ticking... I know I cant delay anymore the specialist will only be available friday since he or she is going on vacation. I just wish I had more time. I felt like we only found out a little while ago that we were expecting. Thank you guys for the support. I dont really feel like speaking to anyone in person i think this is the most ive. said well wrote. Its just that I can say what I need to here and pause if I need to die a little. My husband is trying to be supportive and even though he is sad he tells me that he can never understand what im feeling.. and its true. This being the third time still doesn't make it any easier. Having kids is such a beautiful thing but going through this is so hard
@adri805
@jules
@ourlittlenugget
I want to cry so bad! Im so so so sorry! Im here for you. If you still have my number and want someone to hear you out, let me know, im here.